Reducing tube feedings: I have been wanting to reduce ZZ's tube feedings. That is our long-term goal, afterall. I had been trying to get a conference with the dietician to get her okay, but evidently she was swamped with her inpatients and isn't able to meet until tomorrow morning. I had talked to the ST and the psychologist explaining that he had gained 1 1/2 pounds on my scale and I thought his afternoon sessions would go better without the naptime tube feeding. The psychologist gave me the go ahead. So no tube feeding during nap today!! Hurray!
Sessions: ZZ ate not even one bite during his first session this morning. I talked to the ST about it and explained that he had vomited a little right when he got up this morning. The food was blended pancake which has a little texture to it and she thought that maybe on mornings at home when he's had problems with retching that he be given easier foods like pureed fruit cup or yogurt. He knows by sight and smell the foods being offered so we think he just refused rather than set himself up for a gag. The next morning session went better but still some refusing, but the afternoon went really well.
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